Mini-Doc: «The Life Journey with Primary Immunodeficiencies» скачать в хорошем качестве

Mini-Doc: «The Life Journey with Primary Immunodeficiencies»

Primary Immunodeficiencies (PIDs) are a group of rare and often underdiagnosed conditions that affect people from birth through adulthood and beyond. This mini-documentary explores the life journey of people living with PIDs, highlighting the challenges of delayed diagnosis, access to treatment, and the realities of daily life with a chronic condition. Through patient stories, expert insights and global perspectives, the film shows how PIDs impact individuals and families at every stage of life, and the consequences of limited awareness and support. 🎥 "The Life Journey with Primary Immunodeficiencies” aims to educate healthcare professionals, support patients and families, and raise awareness among the wider public — while advocating for better healthcare access and stronger policies worldwide. 🔗 Learn more about Primary Immunodeficiencies and patient advocacy at: ipopi.org This video was supported by an unrestricted grant from TAKEDA. 00:00 - Intro 01:17 - The Life Journey with Primary Immunodeficiencies 07:02 - The Diagnosis Odyssey 13:58 - The Path to Treatment: Access and Challenges 21:44 - Childhood with a PID 24:11 - Adolescence with a PID. Transition into Adulthood 30:43 - Adulthood with a PID 34:02 - Growing the family with a PID 36:44 - Aging with a PID 39:27 - Call to action and collaboration