ROHHAD Syndrome Awareness video with Robert Downey Jnr and some Incredible ROHHAD Warriors скачать в хорошем качестве

ROHHAD Syndrome Awareness video with Robert Downey Jnr and some Incredible ROHHAD Warriors

Robert Downey Jnr has teamed up with Aaron Hunter to help raise awareness for the children who suffer from the extremely rare, life threatening and life limiting disease ROHHAD. Together they hope to raise funds to help researchers in America, Canada, Italy and the UK , understand the disease, improve treatments and hopefully one day find a cure. This video offers a little insight into what the children diagnosed with ROHHAD suffer with on a daily basis as you meet some of our families and children from around the world. You also get to see Robert meeting Aaron for the first time, and watch as he takes on the Go Mad Jump For ROHHAD Challenge. Robert and Aaron also talk about their mission to Find A Cure and everyone affected hopes that everyone watching this video will get involved and help them Find A Cure. Special thank you to all of the amazing children who are battling hard against the "evil ROHHAD" and their families who participated in the making of this video, Leah Baldock, Lani Jacobs, Holton Jones, Edwin Polese and Aaron Hunter. To Beth, Angelo and Sofia, we cannot thank you enough for sharing the photos and memories of Luca. We love and miss him very much and will always remember him. We suspect that he would be very happy to be in the same video as IronMan! and we know he will be so proud to still be helping raise awareness and help all the children with ROHHAD. Thank you also to Doctor Guftar Shaikh, Peadiatric Endocrinologist at The Royal Hospital for Children in Glasgow. For his support for the charity and dedication to finding a cure for the ROHHAD Children. We cannot thank Robert Downey Jnr and Team Downey enough for their love support and continued support for Aaron and all of the ROHHAD children. We are deeply grateful to them all. This film was created by the very talented Kevin Ford (Team Downey) Please share our video far and wide and if you can support our charity by making a donation and becoming a ROHHAD Avenger visit our website at www.rohhadassociation.com for more information or follow us on FB, Instagram or Twitter.