Rare Life | Real Life | Alagille Syndrome скачать в хорошем качестве

Rare Life | Real Life | Alagille Syndrome

A 2023 Alagille Syndrome Community video created in motivation to raise awareness about Alagille Syndrome, in honor of families living and dealing with this very complex rare disorder and in tribute to the beautiful community members who have passed away and their families. We are committed to ensuring Alagille Syndrome families continually have support and help when they need it. The Alagille Syndrome Alliance holds the community close and strives to be a vessel that elevates the patient voice for families, science and research, in the clinical setting, and for stakeholders around the world. Special thank you to all of the ALGS families and individuals that participated in our rare disease initiatives today.