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In 2008, a diagnosis of Nemaline Myopathy (NM) led one family to ask a critical question: "What can we do to help?" That question led to establishing A Foundation Building Strength (AFBS) as a globally respected organization with an unflinching mission to find effective treatments for this genetic disorder that causes weakness in the skeletal muscles, affecting the ability to move, talk, swallow, and breathe. By uniting leading scientists, clinicians, and determined families, AFBS has built the essential pillars of research—including registries, tissue repositories, animal models, and natural history studies—needed to find effective treatments. Now, we are doubling down on our efforts to move from basic science to life-changing therapies. But we cannot do it alone. 🧬 DONATE TO FUEL RESEARCH: Your support accelerates the path from discovery to treatment. 100% of your monetary gift supports critical research into gene therapies, small molecule drugs, and clinical trial readiness. 👉 Donate Here: https://buildingstrength.org/donate About A Foundation Building Strength (AFBS): AFBS is a 501(c)(3) nonprofit established in 2008 with the mission of finding treatments for Nemaline Myopathy (NM). We work to support the NM community now, while building partnerships with researchers and clinicians to accelerate the progress toward treatments. Our current research priorities include gene therapy approaches, small molecule drug therapies, and supporting natural history studies to ready us for human clinical trials. Stay Connected: Sign up for our email list to receive the latest updates from AFBS and learn more about NM research: https://lp.constantcontactpages.com/s... Are you an individual or a caregiver of an individual affected by NM? Fill out the AFBS Contact Survey so we can connect you with valuable resources, support, and opportunities to get involved with upcoming research studies! https://www.surveymonkey.com/r/AFBS-C... #NemalineMyopathy #RareDisease #AFBS #BuildingStrength #GeneTherapy #MedicalResearch