Understanding Retroperitoneal Fibrosis in IgG4-RD | Patient Stories, Diagnosis & Treatment Options скачать в хорошем качестве

Understanding Retroperitoneal Fibrosis in IgG4-RD | Patient Stories, Diagnosis & Treatment Options

Join Dr. John Stone and Dr. James Tomlinson for an in-depth Fireside Chat on retroperitoneal fibrosis (RPF) in IgG4-related disease (IgG4-RD). This session features expert insights and emotional patient stories exploring symptoms, misdiagnosis, imaging, hydronephrosis, stents, nephrostomy tubes, and treatment options like B-cell depletion and ureterolysis. This video is essential viewing for patients, caregivers, and medical professionals navigating RPF. 00:00 – Welcome & Overview with Dr. John Stone 01:57 – Introducing Dr. James Tomlinson (Hammersmith Hospital, London) 06:18 – Mission of the IgG4ward Foundation 07:30 – Featured Patients: Durkin, Kaya, Ship, and Lisa Uslek 08:00 – John Durkin's Story: Sudden Kidney Pain 13:10 – Understanding RPF Presentation & Symptoms 16:45 – Blood Pressure & Kidney Involvement in RPF 21:00 – Anatomy of Retroperitoneal Fibrosis Explained 23:50 – Patient Story: Mr. Kaya & Misdiagnoses 27:00 – Common Misdiagnoses in RPF 31:25 – Hydronephrosis, Imaging, and Initial Concerns About Cancer 36:30 – Emotional Impact of “Cancer Suspicion” in Imaging Reports 41:00 – Diagnosing RPF: The Role of Biopsies & Imaging 45:20 – Tissue Diagnosis Challenges & When It’s Avoided 48:30 – Experiences with Stents: Side Effects & Alternatives 53:00 – Medical vs Surgical Management of RPF 56:00 – Role of Rituximab & New B-cell Depletion Therapies 59:00 – Ureterolysis Surgery: What It Is & When It’s Needed 1:02:30 – Nephrostomy Tubes: Emergency Intervention Explained 1:06:30 – Patient Outcomes: From Crisis to Recovery 1:09:50 – Live Q&A: Bloating, Bowel Symptoms & Diagnostic Delays 1:14:00 – Who Can Prescribe Treatment: Nephrologists & Coordination of Care 1:17:00 – Key Blood/Urine Tests to Monitor RPF 1:22:00 – Does IgG4 Positivity Matter for Treatment? 1:26:00 – Best Imaging for Old vs. Active RPF 1:30:00 – Closing Remarks & PeachJAM Invitation