Susie & Zayn (Part 2): Advocacy, Survival, and the Fight No One Sees скачать в хорошем качестве

Susie & Zayn (Part 2): Advocacy, Survival, and the Fight No One Sees

Some stories don’t resolve quickly. Some live in the space between crisis and hope. Day after day. Month after month. In the emotional conclusion to this two-part series, Johanna and Peter continue their conversation with Suzie, whose son Zayn continues to battle hypoplastic left heart syndrome (HLHS) and a complex web of GI complications, strokes, feeding struggles, and life-altering medical decisions. Part 2 is a raw look at what happens after the first surgeries, after discharge, after everyone assumes you’re “in the clear.” Suzie shares the moments no parent forgets—the bloody diapers no one took seriously, the medications given without consent, the constant hospitalizations, and the day she finally said, “Find out what is going on with my baby.” She describes the Christmas Eve emergency that changed everything and the interventional radiologist who became, in her words, “an angel of a man.” This is a story of finding your voice, trusting your instincts, and refusing to be dismissed. It’s also a story of love — the kind that learns central-line care, sleeps upright for months, and keeps showing up even when the future feels unbearably uncertain. In this episode: The moment Suzie learned her breastmilk had been fortified without her consent The spiral of bloody stools, endless formulas, and being repeatedly told, “He’s fine.” Christmas Eve in the ICU, when doctors discovered a huge pocket of chylous fluid in Zayn’s chest The interventional radiologist who saved her son Two months of clogged chest tubes, repeated intubations, and fighting to be heard The terrifying diagnosis of pneumatosis and nearly losing Zayn’s intestines The impossible choice: bringing Zayn home on a central line and TPN The heartbreaking losses of hospital friends, and the emotional cost of being a long-term medical parent The breakthrough GI doctor who finally gave them answers after years of not knowing How a single treatment brought Zayn “back to life,” transforming his days from lethargy to joy 💬 “Just fight for them. You’re their voice.” ✨ This is the end of their story on the podcast, but not the end of their journey. Suzie and Zayn continue to fight every day with joy, humor, and extraordinary courage. You can follow them at @susie_zayn_HLHS 👣 Share your story at bornforthestories.com 💛 Follow us on Instagram @bornforthestories 🙏 Subscribe, rate, and share to help us reach more heart families and medical parents who need this space