Embracing Life - Shae Mankey and FSHD скачать в хорошем качестве

Embracing Life - Shae Mankey and FSHD

Ep.8 In this conversation, Leanne speaks with the delightful Shae Mankey about her experiences living with Facioscapulohumeral Muscular Dystrophy (FSHD). They discuss Shae’s career transition to Accessible Accommodation, the impact of childhood disability on her dreams and future aspirations. Shae speaks about the decision not to have children and her love for her husband, family and dog, ending with great advice for those newly diagnosed with muscular dystrophy. SHOW NOTES Accessible Accommodation https://www.accessibleaccommodation.com/ The Accessible Group – Facebook   / accessiblegroup   CHAPTERS 00:00 Introduction and Acknowledgment 03:16 Transition to Accessible Accommodation 06:06 Understanding Muscular Dystrophy 08:57 Adapting to Life with FSHD 11:43 Reflections on Life Goals and Choices 12:36 Not all MDs are the same 14:31 Pivotal Moments and Independence 17:08 Joy, Support and Covid 19:58 Navigating Resources and Advice for Others 23:42 FSHD: it's just different 25:10 Thank you