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Lilly Simon's rare genetic condition was mistaken for monkeypox in a viral TikTok video seen by millions. It had a huge impact on her life and it's now shedding light on a community of people living with a rare genetic disease. I tracked her down and I ended up finding a community of people who are stigmatized online and in person for having a rare genetic disease called neurofibromatosis. -- Follow along for more episode: / tracingthetruth You can support my work here: https://account.venmo.com/u/tracingth.... --- Reporter, Producer, Host: Emmanuelle Saliba Editor: Vladimir Vladimirov -- BIO Emmanuelle Saliba is independent investigative reporter with nearly a decade of experience uncovering, verifying, and analyzing online content. With her series Tracing The Truth, she helps audiences figure out what's real or not online. Before going independent, Emmanuelle created and fronted a series called VERIFIED, where she used visual verification and open-source intelligence techniques to explain global events unfolding on social media. Her reporting appeared on MSNBC and NBC News Now.