Tristan's Rare Disease Day, Every Day - Siblings скачать в хорошем качестве

Tristan's Rare Disease Day, Every Day - Siblings

Tristan is 10 years old. For Rare Disease day 2021, he shares his story of life with a rare condition. For him is Rare Disease Day, every day. This short clip is a preview of his full length film which will premiere on the 28th Feb 2021.    • Видео   Here we learn about siblings of children affected by rare conditions. He loves to be active. He loves to be outdoors - he plays cricket, dances, and learns Kung Fu. Indoors he loves to play computer games whilst chatting to his friends online. Tristan’s love of being active means he has high enthusiasm and likes to lead. He is always complimented on his politeness; he is very thoughtful and inclusive of others. Tristan’s #RareDisease is Russell Silver Syndrome and he receives excellent care at the UK's first #RareDiseases centre for children at Birmingham Children's Hospital and Charity The work of the centre is supported by the Roald Dahl's Marvellous Children's Charity and for those with #Undiagnosed conditions by SWAN UK (Syndromes Without A Name) Tristan and his family are very special members of Cambridge Rare Disease Network’s fabulous #UniqueFeet group of children and their families affected by rare conditions and undiagnosed and they love to get involved in all of our activities. If you have a child with a rare or undiagnosed condition and live in or around Cambridgeshire, please do get in touch at info@camraredisease.org