Conference- Integrating patients into research on brain health and disease скачать в хорошем качестве

Conference- Integrating patients into research on brain health and disease

Patient and public involvement (PPI) is a current trend aimed at making research more relevant, ethical and impactful for people. This process requires adaptation and training for both researchers and patients involved. In the field of health and brain diseases, especially those affecting reasoning, cognitive ability or communication, there is a need to define who is best placed to represent the interests of those who cannot adequately express their needs or preferences. PROGRAMME ➛ Welcome and introduction: Welcome and introduction: Emilio Bouza (Chairman of the Scientific Council of the Ramón Areces Foundation) and Mara Dierssen (Chairwoman of the Spanish Brain Council). ➛ First round table and debate: ‘Current situation of patient and public participation in research’ Introduction and moderation: Alicia Campos, Director of the Parkinson's Federation. Steering Committee of the Patient Organisations Platform. Speakers: Marina Pollan (Director of the Carlos III Health Institute); Norma Alhambra (President of the Phelan McDermind Association); Carmen Moreno (Child and Adolescent Network, European College of Neuropsychopharmacology), Elvira Vacas (President of the Spanish Epilepsy Federation). ➛ Break ➛ Second round table and debate: ‘Proposal to improve patient and public participation in research’ Introduction and moderation: Mara Parellada (Vice-President of the Spanish Association of Child and Adolescent Psychiatry. Institute of Psychiatry and Mental Health, Gregorio Marañón Hospital). Speakers: Emily Jones (Professor of Translational Developmental Neuroscience, King's College London, University of London); Begonya Nafria (Head of Patient Participation in Research, Sant Joan de Déu Children's Hospital, Barcelona); Diego Real de Asúa (Healthcare Ethics Committee, La Princesa University Hospital) ➛ Conclusions *Conference organised by the Spanish Brain Council and the Ramón Areces Foundation. Simultaneous interpretation: AIS Comunicaciones. Interpreters: Ana Villa and Alejandro Caffarini. Asociación de Intérpretes de Conferencia de España (AICE). Remember that you can attend the conference at our headquarters in Madrid, after registering online: https://www.fundacionareces.es/fundac... #health #brainhealth #medicalresearch #medicine #patients