IFOPA Promotional Video (Short Version) скачать в хорошем качестве

IFOPA Promotional Video (Short Version)

The International FOP Association, Inc. (IFOPA) is a nonprofit support organization for families dealing with Fibrodysplasia Ossificans Progressiva (FOP). Our mission is to help advance and support FOP research, education and advocacy, while giving membership a means to cope with the disease, both privately and publicly. Our membership currently spans 52 countries worldwide and includes FOP patients, as well as families, friends, medical professionals and more. FOP is one of the rarest and most disabling genetic conditions known to medicine, causing bone to form in muscles, tendons, ligaments, and other connective tissues. Bridges of extra bone develop across the joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. 💚 FOP (Fibrodysplasia Ossificans Progressiva) is an ultra-rare disease that turns muscle into bone, obstructing movement and hindering lives: https://ifopa.org/what_is_fop 🌎 The International FOP Association (IFOPA) is here to help find a cure through funding research, raising awareness, and supporting the community: https://ifopa.org/about_ifopa 👋🏽 CONNECT: https://fb.com/IFOPA   / cure_fop     / ifopa     / international-fop-association   📬 Sign up for the newsletter and stay on top of the community and the path towards a cure: https://ifopa.org/connect 👨‍👩‍👧‍👦 Register for the next Family Gathering: https://ifopa.org/familygathering. Relive sessions from past Gatherings: https://ifopa.org/family_gathering 🛠️ Check out the Ability Toolbox Guidebook featuring tools and home adaptations for independent living: https://guidebook.ifopa.org 📆 Get involved with our family services, fundraising and awareness events: https://ifopa.org/calendar_of_events 📗 Learn the scientific terminology surrounding FOP in the IFOPA Glossary: https://ifopa.org/glossary ❤️ DONATE and join us to fight FOP and support families in their journey: https://ifopa.org/donate 🙋🏽 FOP Frequently Asked Questions: https://ifopa.org/fop_faq #cureFOP #RareDisease #disability #RAREParenting #caregiver