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Tamryn's Story

Tamryn, age 9, was a regular boy who enjoyed swimming and biking when he suddenly began to experience stiffness throughout his body. His condition worsened to the point that he could no longer control his movements or walk. The Tallahassee native’s family sought the care of specialists throughout the state until they were connected to Nicklaus Children’s Hospital’s Brain Institute and its Neuromotor Center where they found answers. Tamryn had a rare movement disorder that causes involuntary muscle contractions and abnormal movements to the point that he lost the ability to walk. Nicklaus Children’s Hospital’s neurosurgery team implanted a Deep Brain Stimulator on Tamryn, a device that essentially works as a pacemaker for the brain to help control abnormal movements. Within 6 months, Tamryn was already showing signs of improvement and less than a year into his treatment, he was back to doing what he loves most, running, jumping, swimming, and biking. Tamryn’s mother, Tamara said “He told us he felt like a real boy again, and to us, that has been the greatest gift.” #whereyourchildmattersmost, #pediatrics, #parenting, #childrenshealth #torsiondystonia #neurology #neurosurgery