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Welcome & Introduction to Fibrous Dysplasia

This is one of fifteen videos recorded by the Fibrous Dysplasia Foundation at the 2014 Patient and Family Conference. It was held at the NYU Langone Medical Center, New York, NY on October 25-26, 2014. Fibrous Dysplasia Foundation website: http://www.fibrousdysplasia.org Speaker Information: Charles W. Harles Charlie Harles was a founder and is now president of the Fibrous Dysplasia Foundation, established to provide information, advocacy, support, and research on FD, Mc-Cune Albright Syndrome and cherubism. Charlie was first diagnosed at age seven or eight and did not meet another person with FD/MAS until he was over 50 years old. Charlie has been participating in several studies and advocating for persons with FD and MAS at NIH. Though Charlie has had to use crutches or a wheelchair since childhood and has had many fractures and surgeries, he pursued a legal career (JD from University of North Carolina) focused on providing job training and employment for persons with disabilities. Dr. Michael Collins Dr. Collins is the Chief of the Skeletal Clinical Studies Unit at National Institutes of Health in Bethesda, Maryland. His research is focused on the study of bone biology and mineral metabolism. One of his primary foci of research is fibrous dysplasia of bone and McCune-Albright syndrome. Dr. Collins is the author of many scholarly articles on FD/MAS and has cared for more than 200 patients with FD/MAS over the last 15 years at the NIH. He has dedicated a large part of his career to advancing the understanding of FD/MAS, improving the quality of life of patients with FD/MAS through better treatments. He has been involved with the FD Foundation since its inception and serves on the Board of Medical Advisors to the Foundation.