Acquired Sucrose Intolerance in Adults: My Story of Diagnosis and Treatment скачать в хорошем качестве

Acquired Sucrose Intolerance in Adults: My Story of Diagnosis and Treatment

Update! Here's where I am in my recovery two years later -    • {Update!} Acquired Sucrose Intolerance: 2 ...   I'm excited to share that I've made a FULL 100% recovery. I no longer have Sucruose Intolerance. Recovery from Acquired Sucrose Intolerance (as featured in First for Women Magazine) - https://theholymess.com/acquired-sucr... Are you an adult who has been diagnosed with Sucrose Intolerance or suspect you have it? In this video I share my story of symptoms, testing, treatment and diet for managing a new diagnosis of acquired sucrose malabsorption. This is my experience and not intended as medical advice. . If you typically follow my writing & speaking for weight loss, Weight Watchers, or faith, this video isn’t for you, although you are welcome to hear about my experience. I'm sharing because it was hard for me to find information about the diagnosis when I received it, and I hope I can help other adults who are diagnosed. . For over 2 years I've suffered with complex digestive issues and as I've shared on my social media, hundreds of people have supported me and prayed for me. I've also learned that many people struggle with digestive issues, too. If that includes you, you might consider testing for this diagnosis. Before this time, my digestion was healthy and I ate any type of food I wanted. I ate a very healthy diet and exercised to maintain my 100+ pound weight loss. . Sucrose intolerance can be genetic Congenital Sucrase-Isomaltase Deficiency (CSID), often found in childhood, or acquired as an adult. With this condition, the body is lacking the enzymes to digest sucrose, a common sugar. Symptoms include bloating, stomach pain, nauseous, and diarrhea or (in my case) constipation. . My story started with massively bad heartburn that didn't respond to treatment. My GI doctor prescribed high doses of PPIs (proton pump inhibitors). We believe these reduced my stomach acid which may have led to SIBO, Small Intestine Bacterial Overgrowth. I was treated for SIBO multiple times, although the breath test for it was negative. It's possible the SIBO led to digestive track damage, constipation, and now Sucrose Intolerance. I've also been diagnosed with fructose and lactose intolerance and am also lacking enzymes to digest starch, as are most people with SI or CSID. . During this process I had many tests including an upper GI scope, colonoscopy, gastric emptying test, trials of many medications, 10+ types of elimination diets, saw a Registered Dietician (RD), followed a low FODMAP diet, took supplements, and saw 2 functional medicine doctors. (I was desperate. And most of this didn't help. The RD was the best source of help and information.) I tried multiple rounds of treatment for SIBO including xifaxan, Candibactin AR and BR, and other prescription antibiotics. . I got to point that I was too sick to get out of bed and once I went to ER for extreme bloating and stomach pain. A CAT scan showed major constipation which I began treating with prescription and over the counter medications. . Bloodwork showed I had nutritional deficiencies which were leading to major fatigue. . My GI doctor suggested a breath test for SI as a last ditch effort, not really expecting the results to be positive, but they were. . Treatment is Sucraid, which is very expensive and difficult to get covered by insurance, and a strict diet. After multiple appeals, my insurance covered Sucraid and I now take it. I saw some improvement but not enough. It was important for me to learn about the diet. I had to go down to a diet of meat and eggs only, then slowly reintroduce foods in very small amounts, to understand my tolerances. Now I follow a low carb, low sugar diet being careful of even trace amounts of sugar or starch. Even with Sucraid, these foods must be avoided for the most part. I follow a keto-type diet and also do not tolerate artificial sweeteners. . While the diet helped some, it was still not enough. I was tested for Fructose Intolerance by breath test which also came back positive. . I am much improved but still have a long way to go. My digestion is not normal but it's much better than it was. I believe that in time I will heal fully and eventually return to a normal or mostly normal diet once I am healed. . Mastering CSID Online course - written by RD Mary Shepherd, who has CSID herself - https://mastering-csid.thinkific.com/... (affiliate link) Read more here - https://theholymess.com/sucrose-intol... Restoring Gut Health with Diet - https://theholymess.com/restoring-gut... Acquired Sucrose Intolerance Recovery - https://theholymess.com/acquired-sucr... CSID course by a RD - https://mastering-csid.thinkific.com/... (aff link)