Assessing the Implementation of Patient Partnership in the European Reference Networks скачать в хорошем качестве

Assessing the Implementation of Patient Partnership in the European Reference Networks

Patient Partnership in the European Reference Networks (ERNs) can be defined as a mutual relationship between people living with a rare disease (PLWRD) and health professionals involved in an ERN where input from PLWRD routinely and formally informs the Network’s collaborative activities and decision-making. To drive continuous improvement in Patient Partnership within ERNs, EURORDIS has adapted two questionnaires from McMaster University, Canada. These questionnaires would help ERNs assess patient partnership in their Network, identify strengths, highlight areas for improvement, and create a roadmap for ongoing progress in patient partnership based on shared insights. ✅ Learn more about on how to administer the Questionnaires for Assessing Patient Partnership Implementation in the ERNs: https://www.eurordis.org/publications... 👉Explore more resources in the Patient Partnership Hub: https://www.eurordis.org/patient-part... #ERNs #ePAGs #PatientPartnership