The Only Girl In The World With 'Benjamin Button' Disease | BORN DIFFERENT скачать в хорошем качестве

The Only Girl In The World With 'Benjamin Button' Disease | BORN DIFFERENT

SUBSCRIBE to Truly: http://bit.ly/Oc61Hj A LITTLE girl from Leicester is the only person in the world to be diagnosed with an incredibly rare ‘Benjamin Button’ disease. Isla Kilpatrick-Screaton, 4, was born with Mandibuloacral Dysplasia, which is a rapid ageing condition, but doctors discovered she’s the only person with her particular mutation. The condition causes premature ageing of her major organs, including her kidneys and heart, and gives her an appearance much older than her years. Isla’s mum Stacey told Truly: “The mutation [doctors] found, they’d never seen before, they were unable to give us any answers. We have no one we can compare Isla with.” The family try their best to live every day to the fullest, and after sharing Isla’s life on TikTok, they quickly found fans from around the world. Stacey added: “When we first started TikTok, because we were talking about premature ageing, they went with the ‘Benjamin Button’. It definitely drew people’s attention to it.” The family have set up a GoFundMe to help fund Isla’s medical expenses and family holidays to create more fun memories together. Stacey said: “I try my hardest to envision the future and Isla always being in it. I hope she gives me mischief for many years to come.” Follow Isla: Isla’s TikTok: https://vm.tiktok.com/ZMdV2n1Hx/ Fundraising pages: https://gofund.me/5071d06a / https://www.paypal.me/islaspaige Videographer: Nick Hamer Producers: Cecily Snowball and Ruby Coote Editor: Gary Sykes Now you can watch our videos in Spanish!: http://bit.ly/Suscribirse_truly_ES Click here to follow your favourite Truly shows on Instagram! Truly -   / trulyshow   Born Different -   / borndifferentshow   Shake My Beauty -   / shakemybeauty   Hooked On The Look -   / hookedonthelookshow   Love Don't Judge -   / lovedontjudgeshow   Beastly -   / beastlyshow   Ridiculous Rides -   / ridiculousridesshow   Dog Dynasty -   / dogdynastyshow   For more amazing content, click here! Beastly:    / @beastlychannel   Barcroft Cars:    / barcroftcars