Running for Hope: Inspiration from Martin Jarry - Inclusion Body Myositis скачать в хорошем качестве

Running for Hope: Inspiration from Martin Jarry - Inclusion Body Myositis

When Martin Jarry learned he had a rare muscle disease called Inclusion Body Myositis (IBM), he decided to do something about it. He used a robotic device called an exoskeleton to help him run a 10K race, generating publicity for his little-known disease. Martin has been a source of inspiration and hope to others with IBM. In this video, he gives advice and encouragement to other patients who are interested in advocating for their rare disease, both to increase awareness and to fundraise for myositis organizations. To learn more about Martin Jarry and his efforts on behalf of myositis, visit the blog article, Running for Hope: Inspiration from Martin Jarry, https://cureibm.org/running-for-hope-... For more information about inclusion body myositis, visit Cure IBM: https://cureibm.org/ The exoskeleton used by Martin is known as the Keeogo™ Walking Assistance Device. It is manufactured by B-Temia, a company based in St-Augustin-de-Desmaures (Quebec), Canada: http://www.keeogo.com/ Martin Jarry is a French Canadian, and he ran for Myositis Canada: http://myositis.ca/ Martin demonstrated the exoskeleton device at a meeting of The Myositis Association in San Diego in September, 2017: http://myositis.org/