VEDS Action Month 2025 Webinar: Fireside Chat - Meet the Experts скачать в хорошем качестве

VEDS Action Month 2025 Webinar: Fireside Chat - Meet the Experts

The VEDS Movement was so proud to convene Dr. Peter Byers, Dr. Hal Dietz, Dr. Shaine Morris, and Dr. Sherene Shalhub to share their expertise with our community. Watch anytime on demand! RESOURCES MENTIONED • The OHSU vEDS Natural History Study If you are interested in taking part in the study or would like more information, please contact the study team: [email protected] • The VEDS CLARITY Registry This registry gathers data for a longitudinal study on Heritable Thoracic Aortic Disorders, including VEDS, to improve understanding and outcomes, especially in children. https://clarityregistry.com • Montalcino Aortic Consortium (MAC) MAC is an international registry for genetic diseases affecting the aorta, like VEDS, working to improve diagnostic criteria, understand natural history, and discover new treatments. https://montalcinoaorticconsortium.org • Community Questions Questions from the community can be sent to The Marfan Foundation Help and Resource Center here: https://thevedsmovement.org/ask #TheVMatters #VEDSActionMonth2025 #VEDS #VASCULAREhlersDanlos