CdLS Dads- Ken shares his journey with Tami- FULL EPISODE скачать в хорошем качестве

CdLS Dads- Ken shares his journey with Tami- FULL EPISODE

Ken Pfalzgraf and Tammi Disclaimer * Includes conversations about death & dying Ken Pfalzgraf is the father of Tammi who passed away suddenly at the age of 18 in late 2024.Ken started a channel called CdLS Dads to share Tammi’s life and his reflections and learnings as a father. Ken is also an avid guitar builder, tree expert and all around involved citizen in his community. We discuss everything from Tammi’s enthusiasm and connection to music, fatherhood, receiving the CdLS diagnosis, gastric duplicative cyst, seeing your child being dismissed, partnerships, the education system, communication and finding the potential in your child’s life. You can follow CdLS Dads on Instagram @cdlsdads Visit our website at www.canadiancdlsfoundation.com Want to see and hear more stories of families and experts in the CdLS and related rare disease community? You can donate to support our work as a Registered Canadian Charity HERE: https://www.canadiancdlsfoundation.com/donate Learn more about CdLS and our work @ https://www.canadiancdlsfoundation.com Please Subscribe You Are Not Alone Need support: Canadian residents; support@canadiancdlsfoundation.com US residents: outreach@cdlsusa.org