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Asking Sensitive Questions About Vasculitis

0:00 1:13 How can vasculitis and the medication affect our physical and sexual interest? 7:11 After I began taking prednisone my mood swings, and especially my body image (I gained 15lbs) drained me of any interest in intimate or even romantic activity. Is this normal? 12:57 My question is, how do you find a balance with loved ones when you feel like you are a burden? 16:02 I was dating a guy for three years. I was diagnosed with GPA during that time. My boyfriend became resentful because I wasn’t the same person he knew when we began dating. 18:44 For people having vasculitis, GPA for example, is their life expectancy shortened due to the disease always being there? 22:23 My husband and I want to have a baby, but I’m getting more anxious, concerned, and doubtful if we should do it. I have active EGPA. What are the physical risks to both myself and the baby? 25:29 How does vasculitis affect our GI systems? I lost my colon; I have an ileostomy stoma. I have gastroparesis. Intimacy has been a major problem. 30:29 I am a male with testicular pain from my vasculitis. It makes intimacy almost impossible with my wife. Is this common with men who have vasculitis? 35:24 How vasculitis helped me to find the perfect partner. Asking Sensitive Questions about Vasculitis October 2024 Additional Resources: Webinar on Parenting with Vasculitis    • Parenting with Vasculitis   Find additional helpful resources on family planning, pregnancy, and vasculitis https://www.vasculitisfoundation.org/... Webinar on Dating with a Chronic Illness    • Dating While Living with Chronic Illness   Webinar on Navigating Relationships with a Chronic Illness    • Aches, Pains, and Love: Navigating Re...   Sex-Interrupted: Igniting Intimacy While Living with Illness or Disability by Iris Zink & Jenny Palter Come As You Are by Emily Nagoski, her Podcasts, and her new book: Come Together A free PDF guide from the United Ostomy Associations of America https://www.ostomy.org/wp-content/upl...