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Help cure Poppy & Oliver

Poppy (9) and Oliver (almost 2), have Sanfilippo syndrome type B — a rare, fatal genetic disorder often called “childhood Alzheimer’s.” There’s no approved treatment yet, but there is real hope. With your help, we can move a promising therapy forward and give all children with Sanfilippo B the chance to grow up. Poppy and Oliver's family have partnered with the Cure Sanfilippo Foundation, a 501(c)(3) nonprofit dedicated to ending this disease. All donations are tax-deductible, and 100% of funds raised through our family’s campaign go directly toward advancing treatment. This is Their Story, In Their Words ... Our Story Nine years ago, we welcomed our sweet Poppy into the world, full of light, laughter, and endless curiosity. For years, we searched for answers to her developmental regression, never imagining the road that lay ahead. In June 2025, we learned that Poppy has Sanfilippo syndrome type B, a rare, fatal, genetic disorder often called childhood Alzheimer's. Just weeks later, we discovered that her baby brother, Oliver, has it too. Sanfilippo slowly steals a child's ability to walk, talk, eat, and eventually, to live. There is no approved treatment yet, but there is hope. The science is strong, and promising therapies are within reach. But the journey ahead is not easy. This disease is rare, which means many children go undiagnosed or are misdiagnosed for years. Awareness and advocacy are critical to help families find answers sooner and to bring treatment to market faster. We've partnered with the Cure Sanfilippo Foundation, a 501(c)(3) nonprofit dedicated to ending this disease. All donations are tax-deductible, and 100% of funds raised through our family's campaign go directly toward advancing treatment. Our goal is to raise $20 million to move this life-saving therapy forward for Poppy, Oliver, and every child like them. If 800,000 people gave just $25, we would reach our goal. Why We're Fighting We believe God is still writing this story, and our hope is in Him. That hope compels us to act, to share our story and His story with the world. Every prayer, every share, every dollar brings us closer to giving not just our children, but all children with Sanfilippo B, the change to grow up. How You Can Help 1. Pray. Cover our family and every Sanfilippo family in prayer — for strength, wisdom, and miraculous provision. 2. Share. Help this story be seen. Tell your community, your church, your friends — anyone who will listen. Your voice can carry this story farther than ours ever could. 3. Give. If you're able, a gift of just $25 can make an extraordinary difference. *Online donations can be made: https://give.curesanfilippofoundation... *For gifts of $500 or more, we recommend mailing a check to ensure every dollar goes directly to the cause. Checks can be made payable to: Cure Sanfilippo Foundation Memo: For Poppy & Oliver P.O. Box 6901 Columbia, SC, 29260 💜 Learn more or donate: https://give.curesanfilippofoundation... 💜 Follow our journey: Instagram |   / poppyandoliverkempf   Facebook |   / poppyandoliverkempf   Together, we can change the future of Sanfilippo syndrome type B — and give these children the futures they deserve. For Poppy. For Oliver. For every child still waiting. Special thanks to Adam Bradley, https://spiration.tv/ #curesanfilippo #forpoppyandoliver #curepoppyandoliver