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大家好,我是陳書樺,我是兩位孩子的媽媽,同時我也是一名漸凍症患者。 由於我雙腳的肌肉已經嚴重萎縮了,所以我需要長期坐在輪椅上。 OK i love U 這名字是源自于 OKU (Orang Kurang Upaya) 的衍生,因為 OKU 一詞一向來都給人們一種比較感傷、弱勢的印象,但我想要改變這個既定的觀念,為其他跟我一樣的傷殘人士發聲,所以我突發奇想的,為 OKU 這個詞彙做了一些小變化,讓它看起來充滿愛和正能量 😊 就像我是 OKU,但我秉持著非常樂觀,積極和正面的生活態度,我並不覺得身為 OKU,你的人生就非得要毀了。 我們的意志力和生活態度真的很重要,它會引導你人生未來的方向,成為那個「你想要成為的人」。 我希望透過我未來的一些小小心得和日常分享,可以默默的改變這地球上某一個角落,正在因為自己的際遇而傷感的「你」,讓你獲得新得啟發和動力,那就足矣 ❤️ ☀️ Facebook - OK i love U / ok-i-love-u-110424164040094 ☀️ Instagram - okiloveu520 / okiloveu520 ________________________________________________________________________ Hi Everyone. My name is Tan Shu Hua, I am a mother of two children and I am also diagnosed with Amyotrophic lateral sclerosis (ALS). The gradual deterioration and death of motor neurons starts to affect my both legs, I am now in need of wheel chair to help in my movement. The name OK i love U is derived from OKU ( Orang Kurang Upaya). The word OKU always give people the impression that person is weak and inconvenience. But I want to change the perception of this and hoping others have the same life with me have a different mindset and perspective that we still can be living happily. Just like me, I’m OKU but I always have optimistic and positive attitude towards life. I don’t think that your life has to be ruined even if you are an OKU. Our willpower and attitude to live are really important. It will lead and guide you towards who you want to be in the future. I hope that through my little effort of sharing my daily life will at least encourage and change some people’s mindset and also hoping you will be inspired and motivated to live life to the fullest ☀️ Facebook - OK i love U / ok-i-love-u-110424164040094 ☀️ Instagram - okiloveu520 / okiloveu520