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From Unheard to Unstoppable: Harnessing Lived Experience to Prevent Joint Disease in VWD For many living with von Willebrand disease, being truly heard by healthcare providers can be a challenge—especially when it comes to preventing long-term complications like joint disease. This session empowers patients to take charge through self-advocacy and highlights the critical role of the patient voice in shaping personalized, preventative treatment plans. This session was recorded as part of the Advancing vWD Conference, a full-day virtual event dedicated to education, connection, and empowerment for individuals and families affected by von Willebrand disease. 🩸 Learn more about patient-centered care 💪 Discover how lived experience can drive better outcomes 🗣️ Explore the power of self-advocacy in preventing joint damage #vWD #vonWillebrandDisease #BleedingDisorders #PatientAdvocacy #JointHealth #vWDConference #ChronicCare #PreventativeHealth #hopecharities #hopeforhemophilia #BleedingDisordersAwareness #BleedingDisorders #bleedingdisorder #vonwillebrand