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Damian has been using his G-Tube for a little over a year now and with Damian's weakening muscles (including the muscles we use to swallow food), we have now become completely reliant on his G-Tube for Damian's nutrition. I'm SO GRATEFUL we live in a time where having a feeding tube is an option. I could go on and on about the benefits we've gotten from his G-Tube, but this video is mainly focused on one aspect of G-Tube maintenance: changing the button itself. I'll admit it was really intimidating at first, but I'm happy to report it gets easier every time (for me and for Damian)! As always, I'm open to any and all questions! And stay tuned... prep for our next big fundraiser is airing on this channel soon! ________________________________________________ 💙ABOUT DAMIAN💙 Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to raise the $3 million needed to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙 ________________________________________________ 💙 PLEASE HELP 💙 GoFundMe: https://gofund.me/24dc59ae Blog & More: https://www.SaveDamian.com ________________________________________________ 💙 AS SEEN IN THIS VIDEO 💙 Kate Farms Pediatric Vegan Formula: https://www.katefarms.com ________________________________________________ 0:00 - Intro 0:28 - Supplies 2:10 - QC the new button 4:15 - Remove the old button 5:15 - Insert the new button 6:22 - Test the new button 8:04 - Using the feeding tube 10:22 - Fundraising update