XULA 2026 | 01.01.02 - Catrice Grigsby скачать в хорошем качестве

XULA 2026 | 01.01.02 - Catrice Grigsby

Abstract #01.01.02 — UNLOCKING THE MYSTERY OF MULTIPLE MYELOMA Author(s) :: C Grigsby, S Thomas, C Haygood Author(s) Affiliation(s) :: Middle Tennessee State University (CG), Fisk University (ST), Meharry Medical College (CH) Purpose: Multiple Myeloma is the most common blood cancer affecting African Americans, who experience disproportionate incidence, earlier onset, and higher disease burden. AL Amyloidosis, a condition caused by abnormal protein buildup originating in the bone marrow, shares an asymptomatic precursor with Multiple Myeloma known as Monoclonal Gammopathy of Undetermined Significance. Despite these risks, awareness of these conditions remains extremely low in African American communities. In partnership with the Multiple Myeloma Research Foundation, this study assessed adults aged 35 and older to understand their familiarity with these diseases and their confidence in navigating healthcare and advocating for their health. Methods: Participants were recruited through social media, word of mouth, and group communication platforms. A structured survey assessed healthcare perceptions, preferred communication channels, knowledge of Multiple Myeloma and AL Amyloidosis, and self-advocacy behaviors such as asking questions during medical appointments and seeking second opinions. A listening session was also conducted to gather deeper insights into participants’ experiences, beliefs, and informational needs. Results: All participants (100 percent) reported confidence in asking healthcare providers questions, yet only 53.3 percent stated they would seek a second opinion after distressing or unfavorable news. Awareness of these conditions was limited: 43.4 percent were familiar with Multiple Myeloma, and only 13.3 percent had heard of AL Amyloidosis. Perceptions of healthcare providers were mixed, with only 50 percent expressing positive views. Preferences for receiving health information were evenly distributed across phone calls, text messages, and email. Listening session themes reinforced survey findings, revealing low disease awareness, varying levels of trust in healthcare interactions, and a desire for clearer, culturally relevant educational resources. Discussion: Although participants expressed strong confidence in communicating with providers, their limited awareness of these conditions may hinder early detection and prevention. These findings emphasize the need for accessible, culturally tailored education efforts. Aligning outreach with preferred communication methods may enhance engagement, strengthen self-advocacy, and help reduce disparities in outcomes related to Multiple Myeloma and AL Amyloidosis. Grant Support: Multiple Myeloma Research Foundation To stay up-to-date with more health equity news, follow: #XULACon #1JGCollabs