Living with a Rare Cancer (Myelofibrosis) | Mary’s Story | The Patient Story скачать в хорошем качестве

Living with a Rare Cancer (Myelofibrosis) | Mary’s Story | The Patient Story

“Listen to your gut. Listen to yourself, you know, your body better than anybody. Be persistent if you're not listened to, find an MPN specialist.” The cancer experience is so much more than dealing with the physical impacts of treatment and side effects, it can take a big toll on the mental and emotional health. That’s what Mary focuses on in this third and final segment of her series on her rare cancer diagnosis of primary myelofibrosis. Thank you for sharing your story, Mary! In this Series: Our 3-part series with Mary covers everything from getting diagnosed with a rare cancer (this video), the ups and downs of going through myelofibrosis treatment, including Pegasys and hydroxyurea, and the impact of living with a rare cancer. Videos: 1) Getting diagnosed with a rare cancer:    • Getting Diagnosed with a Rare Cancer:...   2) Myelofibrosis Treatment & Side Effects (Pegasys, Hydroxyurea):    • How I Got Through Cancer Treatment & ...   3) Living with a rare cancer (myelofibrosis): (This Video) Full story & transcript → Updated Soon at www.ThePatientStory.com Join Our Community: Website : https://www.thepatientstory.com/ Facebook: @ThePatientStory Instagram: @ThePatientStory Twitter: @patient_story ______________________________ The interview has only been edited for clarity. Contents of this video: 00:00 - Intro 01:04 - Last message on patient advocacy 02:18 - Dealing with uncertainty of cancer 12:55 - What it means to be in pain ______________________________ #thepatientstory #myelofibrosis #rarecancers #patientstories #cancerstories #cancerpatient #cancersurvivor #MPN #myeloproliferativeneoplasms #MF #ET #PV #bloodcancer