EP 140: The future of EHR and data analysis with Ben Goldacre | The Genetics Podcast скачать в хорошем качестве

EP 140: The future of EHR and data analysis with Ben Goldacre | The Genetics Podcast

Summary: This week, we’re joined by Ben Goldacre, a renowned doctor, academic, author, and journalist. His books include “Bad Science” and “Bad Pharma,” among others, and he is currently a Professor of Evidence-Based Medicine at University of Oxford. There, he runs the Bennett Institute for Applied Data Science which aims to pioneer the better use of data, evidence and digital tools in healthcare and policy. Patrick and Ben discuss Join Patrick and Ben for an open conversation about Ben’s choice to step back from the public eye and the power of the OpenSAFELY platform to improve security, transparency and analysis of Electronic Health Records. Show Notes: 0:00 Intro to The Genetics Podcast 1:00 Welcome to Ben Goldacre 02:22 Ben’s open data projects at the Bennett Institute and the challenges they aim to tackle 04:03 Using Electronic Health Records (EHR) to help the National Health Service improve care 06:18 The importance of software development within healthcare data and how to manage salary scales in this relatively new field 08:20 The OpenSAFELY platform: The challenges of data security vs usability 14:47 Diverse opinions on which types of health data should be sharable and how to manage privacy and anonymity 17:46 How to grant access to data while protecting privacy 19:23 Using randomly generated “dummy” data to build and test code and statistical models 20:26 How synthetic data has been used to protect privacy 28:16 The challenges of working with, and analysing, Electronic Health data 30:46 The fact that just 2% of all health data research papers share their code 33:32 Idiosyncrasies of EHR analysis including data inconsistencies and challenges of coding variables within research silos 35:03 Building EHRQL (Electronic Health Records Query Language) to drive standardisation 37:47 OpenSAFELY as a portable, open-source set of data analysis tools including data preparation 38:21 Applications of the OpenSAFELY framework outside of the UK 40:22 How standardisation and domain specific language for data preparation encourages high-quality, unified code 45:10 Ben’s career arc, from public-facing roles to a return to research 51:00 Closing remarks Please consider rating and reviewing us on your chosen podcast listening platform! Find out more opensafely.org