FA Community Voices: Mariano Duque скачать в хорошем качестве

FA Community Voices: Mariano Duque

Mariano shares his journey living with Fanconi anemia (FA). From his unexpected diagnosis to the daily challenges of vision loss, coordination, and uncertainty, Mariano speaks openly about what it means to live with an often invisible illness. A poet, writer, and aspiring master’s student, Mariano reflects on his hopes for the future, his love of storytelling, and the resilience he’s found in community. He also shares the importance of FA research and what donor support means for people and families facing this rare genetic disease. At the Fanconi Cancer Foundation, we’re honored to amplify voices like Mariano’s, voices that remind us why research and community support are essential. 💙 Learn more about Fanconi anemia and support research: https://fanconi.org