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*Disclaimer: This video is for educational and entertainment purposes only. Please consult with your medical provider before making any changes to your health plan. Content Warning Please note that this video contains discussions of vulvar cancer and includes a traumatic story of a survivor's fight for a diagnosis. Mentions of sexual assault and trauma are also included. If this doesn't feel safe for you right now, please return when you feel more grounded. If you do watch the video, please be sure to do self-care afterward. In this video, I am joined by the beautiful LS and vulvar cancer warrior Yohanna Hoehler, founder and director of Vulvar Cancer Awareness Forum. One of our first videos on LSSN's channel was vulva checks for lichen sclerosus. However, given that lichen sclerosus has a slightly increased risk of developing vulvar cancer, many folks started messaging us about what they should be looking out for with respect to vulvar cancer. Thus, we thought, "OK, we need to do a video on vulva checks and vulvar cancer to empower folks to take control of their health and advocate for themselves. In today's video, Yohanna shares her incredibly powerful diagnosis story, and then we discuss vulva checks for vulvar cancer, what signs you should be looking for, and what things you should be feeling for. Then we discuss what to do if you find something during your vulva check and how to advocate for yourself. Be sure to like this video and subscribe to our channel for more educational LS content. * Yohanna's links: Yohanna's social media - Follow her on IG and FB: @vulvarcancerawareness Go to the public forum at facebook.com/vulvarcancerawarenessforum Vulvar Cancer Patient Support Network - https://www.facebook.com/groups/vulva... VIN Support Group - https://www.facebook.com/groups/vinpa... Family & Friends Support Group https://www.facebook.com/groups/16513... * Important Links Get my FREE eBook on vulvar lichen sclerosus at www.lostlabia.com/lsebook Want to work with me? I offer 1:1 lichen sclerosus peer support calls. Book here: www.lostlabia.com/supportcall Canadian Amazon Storefront: https://www.amazon.ca/shop/thelostlab... USA Amazon storefront: https://www.amazon.com/shop/thelostla... Subscribe to LSSN's newsletter here: lssupportnetwork.org/subscribe Subscribe to TLLC's newsletter here: www.lostlabia.com/subscribe * Time Stamps: 0:00 - Introduction 04:00 - Yohanna's LS and vulvar cancer diagnosis story 39:28 - The importance of early detection for LS and vulvar cancer 42:06 - Vulva checks for vulvar cancer: what to look out for 48:34 - Accessibility of vulva checks for vulvar cancer 49:23 - Pictures and vulva checks for vulvar cancer 55:50 - What to do if you see something during your vulva check 1:05:18 - The importance of self-advocacy 1:10:52 - Honoring the lives lost from vulvar cancer 1:13:50 - Moving forward and outro * Related videos Signs and Symptoms of Lichen Sclerosus: • Lichen Sclerosus Signs and Symptoms: What'... Fusing and Resorption: • Lichen Sclerosus Terminology Fundamentals:... * Reach out to me: Email: jaclyn@lostlabia.com & @thelostlabiachronicles on Instagram, Facebook, & TikTok #lichensclerosus #vulvacheck #vulvarcancer #vulvarcancerawareness #vulvalcancer #vulvalcancerawareness #checkyourvulva #howtodovulvacheck #clobetasol #temovate #dosing #topicalsteroids #biopsy #lichensclerosis #lichensclerosusinformation #lichensclerosuscauses #lichensclerosussymptoms #lichensclerosustreatment #lichensclerosussupport #vulvovaginaldisease #raredisease #skindisease #gynecology #dematology #pelvichealth #vulvarpain #thelostlabiachronicles #lostlabia #pathology #diagnosis #vulva