Honouring Incredible Women & Their Amazing Families🤍 скачать в хорошем качестве

Honouring Incredible Women & Their Amazing Families🤍

Interview 1 – Alex & Jack (Duchenne Muscular Dystrophy) Alex shares the heartbreaking journey of raising her son Jack, who was diagnosed with Duchenne Muscular Dystrophy (DMD), a rare and progressive muscle-wasting condition with no cure. Joining Jack was founded by Jack’s parents to raise awareness and funding for research and treatments for boys living with Duchenne. The charity campaigns, fundraises and supports clinical trials to help bring better care and future treatments to children affected by the condition. 🔗   / joiningjack   🔗 https://joiningjack.org/ Interview 2 – Poppy, Marlowe & Harper (Cerebral Palsy) Poppy shares her story as a mum to twin daughters Marlowe and Harper, who both live with Cerebral Palsy. During pregnancy, Poppy also experienced Stage 4 Twin-to-Twin Transfusion Syndrome (TTTS), a serious and life-threatening condition that impacted the twins before they were even born. The family are raising funds for SPACE Hertfordshire, a charity that has supported Poppy and her daughters. One of our other mums, Layla, works at SPACE and kindly invited Poppy to join this campaign to celebrate mums on Mothers Day. 🔗  / spacehertfordshire   🔗https://spaceherts.org.uk/ Interview 3 – Corina & Daisy (Down Syndrome) Corina opens up about raising her daughter Daisy, who has Down Syndrome and complex medical needs. Daisy spent months in intensive care as a baby and now lives with multiple health challenges. Corina is raising funds for Cosmic, a charity that supports babies and children in intensive care at hospitals in London. Cosmic funds life-saving equipment, medical research, specialist training and provides support for families going through incredibly difficult times. 🔗   / daisys21wishes   🔗 https://cosmiccharity.org.uk/ Interview 4 – Layla, Amelia, Lily & Ella-Mai (Autism) Layla speaks about life raising her daughters, one of which has been diagnosed with Autism. She shares the challenges and the joys of supporting neurodivergent children and helping them thrive. Layla works for SPACE Hertfordshire, a charity that supports thousands of families across Hertfordshire by providing community support groups, workshops, activities and practical resources for parents and children navigating neurodiversity - something which is very close to her heart. 🔗  / spacehertfordshire   🔗 https://spaceherts.org.uk/ Interview 5 – Emily & Leni (Sanfilippo Syndrome / Childhood Dementia) Emily shares the devastating story of her daughter Leni, who was diagnosed with Sanfilippo Syndrome (also known as childhood dementia) shortly before her second birthday. The condition causes children to gradually lose the ability to walk, talk and function. Emily and her family are fundraising to help access potential treatments and support Leni’s care as they fight to give her the best possible future. 🔗@Saving_Leni 🔗 https://gofund.me/a86be2cf5 Interview 6 – Annalise & AJ (Alström Syndrome) Annalise shares the story of her son AJ, who lives with the rare genetic condition Alström Syndrome. After years of medical investigations, AJ finally received his diagnosis at five years old. The family are raising funds for Alström Syndrome UK, which provides support, information and advocacy for families living with this extremely rare condition, while also raising awareness and promoting research into treatments and care. 🔗   / alstromsyndromeuk   🔗 https://www.alstrom.org.uk/