What it's like having an Indiana Pouch скачать в хорошем качестве

What it's like having an Indiana Pouch

I made this video for my friends who had many questions after my surgery. But I wanted to share it on YouTube so that others could benefit from it as well. So this video is for anyone contemplating having bladder removal surgery with an Indiana Pouch surgery. (Side note: Those are drains on my lower abdomen, those come out after several weeks post-op) For those not familiar with what this procedure: I had a cystectomy, or bladder removal. This particular procedure is called a continent urinary diversion, or an Indiana Pouch. They removed my bladder and took a third of my colon and created a new "bladder" or pouch. There is a catheterizable channel, or stoma, in my belly button that connects to my pouch. I empty my pouch, just as normal people pee, by using a catheter, as shown in the video. I had to have the surgery because I had a very painful condition called Interstitial Cystitis. It is a painful condition where the bladder lining is constantly inflamed, and some have open sores, or Hunners Ulcers, on the lining of the bladder. To get an idea of what it feels like to have Interstitial Cystitis (IC), imagine if you'd cut your palm with a knife and then someone poured lemon juice on the wound. This is what it feels like all day, every day, since the bladder is constantly filling with urine 24/7. Most people with IC find themselves going to the bathroom many, many times per day. I would sometimes go 100+; one night I logged 64 times getting up to use the restroom. Needless to say, you get no sleep.For some, IC is manageable through diet or behavioral changes, but for some, the only option is removing the source of the pain, removing the bladder. IC is actually ranked higher than cancer for pain; cancer pain is ranked #6 in the top more painful medical conditions, whereas IC is ranked #3. If someone you know is struggling with IC, or an invisible illness, please be compassionate and do not judge. I would not have had such a radical surgery if the condition wasn't so painful, and hadn't stripped me of any quality of life. Please do not question anyone with IC, they are already suffering enough. I hope this video is helpful!!! If anyone is considering the surgery or has any questions, please feel free to ask. All I ask is that you are RESPECTFUL Thank you :)