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Father's Battle

Steve Snedeker shares his thoughts about raising 3 children with a rare disease and Paige and I show our physical progress. We never stop trying to improve our health. Welcome to our channel! Rolling with the Sneds is where you can come and get to know Tyson and Paige Snedeker and their life with the rare disease of Riboflavin transporter deficiency; a progressive neurodegenerative disease characterized by paralysis of the cranial nerves, sensorineural deafness, and signs of damage to other nerves. Join alongside us as we journey through what it's like to live with these disabilities, how we overcome obstacles, share our dreams, the new treatments and physical therapy that are giving us hope, and more! We hope you subscribe to us and share with your friends to help us spread awareness for those who also suffer from RTD. We are Floridians who love our Lord and Savior, Jesus Christ, and are supporters of President Trump with the "Right to Try" that is allowing us to use EO that may literally save our lives. We are very new to the YouTube scene and are very excited to meet all of you. God bless you! Come roll with the Sneds on social media! We are on Facebook, Instagram, Twitter, & Parler as @snedekerfamily .