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http://www.cincinnatichildrens.org/se... Shane DiGiovanna and his mother Patsy share Shane's story of living with a rare genetic skin condition known as epidermolysis bullosa. Their family tried many hospitals around the country before coming to Cincinnati Children's Hospital Medical Center, where they've found not only expertise on Shane's rare condition, but a place where they feel comfortable and confident in his care. Shane was also born hearing impaired and received cochlear implants at Cincinnati Children's, giving him language for the first time at age 3.5. The family firmly believes that their coming to Cincinnati Children's has made Shane's future dreams possible.