UPDATE - 30 MONTHS (2.5 years) post HSCT Stem Cell Transplant - An honest review скачать в хорошем качестве

UPDATE - 30 MONTHS (2.5 years) post HSCT Stem Cell Transplant - An honest review

Multiple Sclerosis VS Hematopoietic Stem Cell Transplantation (HSCT). A review of HSCT Stem Cell Transplant, 2.5 years after having it done. Here I discuss what my personal experience is and how it how having the transplant has been for me. In October 2018, I went to Mexico and had HSCT a stem cell transplant. I made the decision to stop my disease modifying drug Tysabri, because it wasn’t working for me as my health was still deteriorating even though I did not have a relapse since 2014. After speaking with my neurologist, I asked if I could have the stem cell transplant and as I did not fit under the criteria here in the UK, I was not able to have this done. I then took matters into my own hands, stopped my MS drugs, started fundraising and made my way to Mexico Clinica Ruiz, where I had heard good things about the transplant from many people that had already had it done. HSCT or Hematopoietic Stem Cell Transplant is not a cure for MS, but it does halt/stop progression of Muktipke Sclerosis if you are 1 of the 80% of people that it works for. With me relying on 2 crutches, I did not want to wait until I became permanently disabled in a wheelchair and then think about having this treatment by which time it would have been harder to see greater benefits or it maybe have even been too late. It just so happens that three weeks before I was due to go to Mexico, I managed to get sepsis and ended up in hospital. I wasn’t even sure if I was even going to be well enough to go to Mexico. Luckily, 1 week before I was due to leave, I was given the all clear by the doctors in Mexico to have the transplant. After getting sepsis, I ended up upgrading to a walker because I did not feel safe on my crutches anymore. I guess the sepsis took my ability to balance. I now also use a wheelchair when I go on any distances more that 5 metres. I know the process of recovery is going to be very long and is very much a rollercoaster. What makes it harder for me is that I had sepsis before the transplant and to recover from sepsis alone takes a very long time for people with a normal immune system, let alone someone with MS and who has had HSCT. Normally recovery can take between 1-2 years but I think I’m looking at 3 years from what I’m being told. I am hopeful that I will start seeing some more improvements from the treatment but if anything I am happy not to be in a worse position than I was. I’m happy that if it has worked my disability does not progress. At 19 months I was feeling stronger than I had been since the transplant with improvements in stamina, balance and movement from physio and exercise. Stress, diet and sleep also play a massive part in this recovery and I must stress that it’s so important to do these also. At 2.5yrs (30 months) - I’m now struggling spot. I do keep up with my physio but still feel what m putting in is not enough to have a significant effect n my well being. I’ve joined the MS gym in the hope that I can improve my overall health. From having HSCT, I’m not sure f now I would recommend others to do it if they have a similar disability. I think I would advise them to spend it on a nutritionist, physio and a personal trainer which would have more benefits. Again it’s so important to realise it’s a very long road to recovery and is also a rollercoaster ride, with good and bad days. I have friends that have also had the treatment who have had more symptoms arise and also feel worse after the transplant and have often wondered why they had it done and if they should’ve had it done at all. this again could just be there recovery period or that the treatment hasn’t worked for them. On the other hand I have made friends that are doing really well after the treatment. It’s important to remember, HSCT is not a cure but it’s done to stop or halt progression. Any benefits or improvements that you receive after the transplant is an added bonus, and I for one am very grateful for these. If you would like to follow my journey please like, share, and subscribe to my channel. If you have any questions please do send me a message and I will answer back as soon as I can. WANT TO KNOW MORE? HAVE YOU SUBSCRIBED?: goo.gl/XDuUZW Follow my diaries, vlogs, on how and what keeps me going with this fantastic disease... argh!! .....did you subscribe...? Share your stories with me. #multiplesclerosis #ms #msandbabies #mspregnancy #lifewithms #stemcelltransplant #HSCT