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This webinar aired on Nov 17th, 2025 Managing Von Hippel-Lindau disease (VHL) requires more than treating individual tumors - it demands a carefully coordinated approach to care. Because VHL can affect multiple organ systems, patients benefit most when their care is managed by a multidisciplinary team that communicates and collaborates effectively. This webinar explores how a team-based approach leads to better outcomes and quality of life for people living with VHL. Our expert presenters from UT Southwestern will discuss how coordinated care is implemented in clinical practice, what patients and families can do to ensure their care team is aligned, and how to make use of trusted resources such as the VHL Alliance Clinical Care Network and VHL Surveillance Guidelines. 1:30 | What is VHL Disease 4:20 | Manifestations of VHL 6:28 | Treatment Options 7:24 | Belzutifan 11:01 | Coordinated Care 16:17 | Key Takeaways 18:15 | Q&A Speakers: Kevin Courtney, MD, PhD Professor, Department of Internal Medicine, Division of Hematology/Oncology Director, Genitourinary Medical Oncology Co-Leader, Genitourinary Oncology Disease-Oriented Team UT Southwestern Harold C. Simmons Comprehensive Cancer Center Qian (Janie) Qin, MD Assistant Professor, Eugene P. Frenkel, M.D. Scholar in Clinical Medicine Department of Internal Medicine, Division of Hematology/Oncology UT Southwestern Harold C. Simmons Comprehensive Cancer Center