Children develop brain aneurysms too: Here's what you need to know | BAF Panel Discussion скачать в хорошем качестве

Children develop brain aneurysms too: Here's what you need to know | BAF Panel Discussion

Pediatric aneurysms are not as common yet just as devastating as brain aneurysms experienced by adults. Twenty percent of aneurysms in children are larger than 2.5 cm in diameter and four times more likely to present with a brain bleed known as a subarachnoid hemorrhage (SAH). They are less understood and have some differences that make it challenging for families and medical professionals to diagnose and treat. Learn more about pediatric aneurysms, what makes them different than aneurysms in adults and find out what is being done to help this younger demographic in this webinar consisting of a panel of doctors and family members affected by pediatric aneurysms... @00:00:00 Welcome! Introducing the first pediatric brain aneurysm /AVM webinar @00:01:14 Introducing the panel… Todd Helton: Father of 11-year-old daughter, Ellie, who passed away from a pediatric aneurysm rupture/Live Like Ellie Ken and Daniel Trush: Father and son who survived a pediatric aneurysm rupture/Daniel’s Music Foundation Dr. Deanna Sasaki-Adams: UNC Medical School/Researcher Dr. Alfred See: Boston Children’s Hospital Dr. Ana Ubeda Tikkanen: Boston Children’s Hospital @00:01:48 What demographic is most likely to have a brain aneurysm? What facts, signs and symptoms of a brain aneurysm are important for the public to know? @00:04:27 Do pediatric brain aneurysm statics differ from adults? Are the symptoms the same in adults and children? What about AVM’s in children? @00:10:27 Is brain aneurysm misdiagnosis occurring in children? What is being done to address this? @00:14:13 What are the parent’s reactions when they are first told their child has a brain aneurysm. @00:21:49 Are siblings concerned when their sister/brother has an aneurysm and what do they ask? @00:30:51 What was it like when you first started your pediatric aneurysm recovery journey and what were the biggest challenges after rehab? @00:33:46 Daniel, how has music helped you in your recovery? How would you like to see music as a tool for recovery, especially for the youth? @00:37:35 What’s the recovery process for a child post aneurysm and AVM treatment? What are the challenges? Has music been used as a recovery tool? @00:44:12 Is there any research that is targeting pediatrics? Is general aneurysm/AVM research applicable to the pediatric community? @00:51:29 Do you think more needs to be done to raise awareness and educate the public and medical professionals about pediatric aneurysms? @00:58:08 What kind of support and resources would you like to see offered to families that have a child with a brain aneurysm? @01:05:29 How do you think you and your medical facility are doing when it comes to supporting the pediatric brain aneurysm community for loss and recovery? What changes would you like to see? @01:10:31 Q&A