Interview Switcheroo: Leanne and LGMD скачать в хорошем качестве

Interview Switcheroo: Leanne and LGMD

Ep.1 Welcome to You, Me and Muscular Dystrophy—a series where we ask 10 questions to people impacted by the many forms of muscular dystrophy, uncovering how our diagnoses and journeys can be both different and yet deeply connected. In this very first episode, I hand the mic to my daughter Amy, who turns the tables and interviews me and my Limb girdle muscular dystrophy journey. Amy kicks things off by asking: “Who are you, and what’s your connection to muscular dystrophy?” I share my story as Leanne Watson—a mother, grandmother, and advocate living with adult-onset limb girdle muscular dystrophy. Over the past 20 years, my diagnosis has reshaped my life and led me into disability advocacy through blogging, podcasting, and even public radio broadcasting in Geelong. Amy reflects on my journey as a now freshly-turned 60-year-old, noting both the life I lived before disability and the challenges and redefinitions that came after. Together, we talk candidly about life before and after diagnosis, how my younger self imagined adulthood, the privilege of experiencing many milestones without barriers, and the profound changes disability now brings to daily life. With honesty, humour, and love, we set the stage for future conversations with others in the MD community. Chapters list 00:00 Introduction to Muscular Dystrophy Conversations 02:07 Leanne's Journey with Muscular Dystrophy 07:51 Reflections on Life Before and After Diagnosis 15:07 Understanding Ableism and Its Impact 20:15 Navigating Change and Self-Compassion 21:15 Navigating Daily Life with Disability 25:13 Pivotal Moments in the Disability Journey 29:18 Processing Emotions and Family Dynamics 30:07 Finding Hope and Joy in Everyday Life 36:42 Advice for the Newly Diagnosed 40:16 outro+music.mp3