Video about Adam and Lea and their journey with Sanfilippo скачать в хорошем качестве

Video about Adam and Lea and their journey with Sanfilippo

This is a video about Adam and Lea - amazing siblings who share not only big brotherly Love but also fatal genetic disease. They both suffer from genetic metablic disorder, MPS 3 also referenced to as Sanfilippo syndrome. This disease will allow them to develop only until age 3-4, afterwards taking away from them all the skill they acquired and eventually also their life. Children with Sanfilippo die before reaching aduldhood and the average life expectancy is around 15 years. To make the future of Adam and Lea different than the one described above we raise funds to help researchers around the world in finding a cure for Sanfilippo. Currently promising treatments are at a stage of clinical trials on humans. If they turn up successful Adam and Lea will be saved. However, in such trials only a very limited number of small patients can take part. Moreover, in case of Sanfilippo it is time that counts the most. Therefore, we want to support and extend the current trials as well as other research currently conducted to find an effective cure for Sanfillipo before Adam and Lea die. How you can help? Go to: adamlea.eu, sanfilippoinitiative.org, sanfilippo.org.pl and choose your way to support our kids and give them hope! Share, donate, support!!!