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Lived Experience in Research and Evaluation

Lived experience involvement in all forms of research and evaluation is becoming the norm. Major funders like the NHMRC and MRFF have funding streams that require lived experience involvement in applications, and some journals now require authors to justify the exclusion of lived experience experts within study design and analysis. In this presentation, lived experience researchers Dr. Tessa Zirnsak and Ailsa Rayner will give an overview of different models of lived experience involvement that can be adapted and discuss the values and practicalities associated with this emerging norm in research and evaluation. Presenter details: Dr. Tessa Zirnsak is a lived experience mental health researcher at La Trobe University. Her areas of expertise are lived experience involvement in research and evaluation, compulsion in mental health, and disability and mental health advocacy. Ailsa Rayner is a lived experience researcher, author, and peer workforce leader dedicated to transforming mental health systems through rights-based, consumer-led approaches. Her extensive work includes co-authoring "Shining a Light," serving on the Lived Experience Leadership and Transformation team, contributing to UN submissions and evaluation of mental health reform projects. Currently, Ailsa focuses on building mechanisms for accountability, access, and action to ensure lived experience leadership is properly represented, resourced, and respected, while maintaining her characteristic dry sense of humour. This event was hosted by the South Australian Regional Network of the AES. AES membership helps make sessions like this possible by supporting the infrastructure, technology and community connections that enable us to deliver high-quality professional learning across Australia and Aotearoa New Zealand. Join the Australian Evaluation Society today and be part or a community making a difference: www.aes.asn.au/become-a-member