Healthier Handoffs: Perspectives on Transitions in Care скачать в хорошем качестве

Healthier Handoffs: Perspectives on Transitions in Care

©2025 Ipsen Biopharmaceuticals, Inc. All rights reserved. December 2025. NON-US-004424 Transitions in care are challenging and can have serious consequences for people living with a rare liver disease and their families. Through expert insights shared and firsthand accounts from the community, virtual attendees will learn actionable healthcare self-advocacy considerations they can take through all of life’s stages. Expert panelists include: • Nitika Gupta, MD, Pediatric Hepatologist at Children’s Healthcare of Atlanta and Professor of Pediatrics at Emory University School of Medicine • Daniel Pratt, MD, Gastroenterologist, Clinical Director of Liver Transplantation and Director of Autoimmune and Cholestatic Liver Center at Massachusetts General Hospital and Assistant Professor of Medicine at Harvard Medical School • Susan Shanske, MSW, LICSW, Dir. Transitional Care Support, BRIDGES Adult Transition Program, Boston Children’s Hospital Marissa, living with progressive familial intrahepatic cholestasis (PFIC) • Nicola, primary sclerosing cholangitis (PSC) post-transplant living donor recipient • Amber, living with primary biliary cholangitis (PBC) • Jordan Sarbaugh, Mom, Co-Founder & President of BARE (Biliary Atresia Research & Education) Chapters: 0:00 Welcome 1:48 Keynote: There is no “one-size-fits-all” 10:05 Panel: Understanding the experience and creating the support teens need 27:00 Panel: Healthcare providers building bridges to support patients 43:55 Panel: Transitions are lifelong 58:31 Closing Remarks