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0:00 - 0:30 Intro 0:32 - 4:39 Can you share your personal journey and what you inspired you to create Ancan? 4:40 - 8:08 When did you realize you had Visual Snow Syndrome and how did you react? 8:09 -10:50 - What symptoms do you experience, and how hace they impacted your life growing up? 10:51 - 11:45 Are there any strategies, routines or tools that have helped you manage your symptoms? 11:46 - 16:32 What has your experience been like attending the VSS support group with Ancan and VSI, and what have you learned? 16:33 - 17:46 What kind of feedback have you received from participants? 17:47 - 19:31 Through your involvement, has anything about VSS surprised you or stood out as especially important? 19:32 - 21:00 have any VSI resources been especially helpful to you? 21:01 - 24:30 What message would you share with individuals with VSS, the medical community and those interested in advocacy? 24:31 - 26:15 What makes Ancan real-time peer led video support and safe space and judgement free policies unique? Visual Snow Initiative (VSI) - Official Links 🔹 VSI Website: https://www.visualsnowinitiative.org/ 🔹 VSI 4 Kids Website: https://vsikids.org 🔹 Support Research for Visual Snow Syndrome: https://visualsnowinitiative.networkf... VSI on Social Media 🔹 Instagram: / visualsnowinitiative 🔹 TikTok: https://www.tiktok.com/@visualsnowini... 🔹 X/Twitter: / visualsnowinit 🔹 Facebook: / visualsnowinitiative 🔹 LinkedIn: / visual-snow-initiative 🔹Google Scholar: https://scholar.google.ca/citations?u... About The Visual Snow Initiative (VSI) is a nonprofit organization that was created to establish global awareness, education, recognition, resources, and research for Visual Snow Syndrome (VSS) 👁️🌨️🧠, a neurological condition affecting an estimated 2-3% of the global population. VSS can impact vision, hearing, cognition, sensory processing, and quality of life for individuals of all ages. #VisualSnow #VisualSnowSyndrome #VSS #SeeingStatic #Palinopsia #Neurodivergent #Neurodiversity #InvisibleIllness #ChronicIllness #ChronicMigraine #Floaters #Afterimages #LightSensitivity #Tinnitus #VisionTherapy #Neurology #Anxiety #Depression #Dissociation #NeuroOphthalmology #NeuroEyeHealth #Brain #BrainHealth #BrainScience #NeuroScience #Neuroplasticity #BrainFog #Migraine #CognitiveHealth #NeuroResearch #Science #MedicalScience #BrainResearch #Neuroscience #ScientificResearch #VisualSnowInitiative #VSI #Advocacy #Education #Resources #Research #Recognition #SupportResearch #Nonprofit #Charity #HealthAwareness #MedicalResearch #HealthEducation #HealthCare #Doctor #TikTok #Instagram #YouTubeShorts #ExplorePage #Trending #FYP #Health #HealthAdvocacy #LearnOnTikTok #NORT #MBCT #Vision #Sleep #Symptoms #Ophthalmology #Aura #NightBlindness #Halos #Greenscreen #Depersonalization #LightSensitivity