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May is Ehlers-Danlos Syndrome (EDS) Awareness Month. I like to try and make a video each year for this, and this year I came across a tag called This is My EDS by Annie Elainey. I've used Annie's words to describe this tag below (under the hashtag). I really hope it helps to hear how EDS affects me. And if you fancy doing the tag yourself, please tag me and link back to Annie. Annie's Channel - / @theannieelainey Annie's Part 1 video - • What EDS is like on MY Body #ThisIsMyEDS T... Zebra Sweatshirt - https://www.sugarhillbrighton.com/pro... If you have any questions or want to see any other videos, please do let me know. And keep your eyes peeled for Parts 2 and 3 later this month! #ThisIsMyEDS Tag For EDS Awareness Month I’d like to try and uplift the DIVERSITY of EDS and how it impacts our lives as individuals. After having a doctor say, “I know someone else with EDS and THEY don’t use a wheelchair!” I think that our individual narratives need to be uplifted. EDS manifests itself on a wide spectrum and our symptoms can be fluid as well. You can answer these questions on a blog but I really conjured them up with video series format (in three parts, to be released throughout the month) in mind. Feel free to exclude any questions that you feel don’t apply to you or you are not comfortable answering and feel free to add anything you’d like to discuss. The goal is to have them start to go up on May 1st or whenever spoons allow. Questions for this video: PART 1: WHAT IS EDS IS LIKE ON MY BODY #ThisIsMyEDS Introduce yourself: name, pronoun(s), and EDS type. First things, first, in one word, how are you feeling today? For those who don’t know, can you explain EDS [medically] in a sentence? What’s your favorite analogy for how EDS feels? Or what EDS is like? What are your symptoms and comorbid illnesses/conditions? Here are a few examples: Chronic Pain, Joint Pain, Muscle Pain, Hypermobility, Lax and fragile joints, Frequent dislocations and subluxations, Easily Bruise, Stretchy Skin, Chronic Fatigue, Chronic Migranes, Chiari Malformation, POTS, Dysautonomia, Gastroparesis, Sleep Disorders, Seizure Disorder, Anxiety, Depression, Bipolar Disorder, Lower Vision, Hearing Loss, Pulmonary Issues, Cardiovascular Issues, Cognitive Impairments: Difficulty concentrating, poor memory, Irregular body temperature, Limited ability to walk, Limited ability in upper body, Physical disabilities, Osteoporosis, Arthritis, Reproductive Issues, Aneurysm, Degenerative Disk Disease, SI Joint Disease, ANYTHING ELSE EVEN IF I DIDN’T INCLUDE How does EDS impact your daily life? How often are you in the hospital? What physical disabilities impact your daily life? Devices you use for your survival? Do you work? Are you often on bed rest? How often are you injured? How do you try to prevent injuries (accessibility needs)? How does it impact you emotionally, your mental health? Where you can find me: Blog - www.jaffacat.co.uk Facebook - https://www.facebook.com/Ramblingsofa... Twitter - @Jennycole04 Instagram - @Jennycole1988 Pinterest - Jennycole44 Google+ - https://plus.google.com/+JennyColeJaf... Snapchat - Jennycole44 Anything marked with a * has been sent to me for review purposes, but all opinions are my own and I will only talk about products that I feel fit in with my channel/blog. Music by Epidemic Sound (http://www.epidemicsound.com) I'd love to hear your comments and will reply to as many as I can :)