Planning for care in familial Alzheimer's disease (FAD) скачать в хорошем качестве

Planning for care in familial Alzheimer's disease (FAD)

In this heartfelt and informative session, Vanessa Souza from the Alzheimer’s Association joins Youngtimers community members Alicia and Jessica to discuss how to plan for care when facing Familial Alzheimer’s Disease (FAD). Whether you’re navigating a diagnosis, supporting a loved one, or just planning ahead, this video covers everything from legal documents and financial planning, employment choices, making meaningful memories, and adjustments to stay independent for longer. This conversation is especially helpful for families with genetic mutations that cause Early Onset Alzheimer’s, offering practical advice and real-life examples. 00:00 Introduction 01:04 What planning for care in familial Alzheimer’s disease entails 01:50 Unique considerations for FAD 02:54 Further considerations for familial Alzheimer’s disease 03:54 Starting a discussion about the future 04:46 Legal documents to create or update 07:22 Financial considerations 08:29 Organizing legal plans 08:44 Types of insurance in the U.S. 11:16 Compassionate allowance initiative (U.S.) 11:53 Work and the person with FAD 14:16 Do a personal work assessment (and re-assessment) 14:39 Work and other family members 15:37 Understand your options and rights before making employment decisions 16:23 Balancing safety, independence, and happiness 19:47 Making memories with loved ones 20:40 What can go into an advance directive? 🧠 About Youngtimers Youngtimers is a supportive community for individuals and families facing the realities of familial Alzheimer's disease (FAD). We promote community, education, support, and research to improve the lives of people who are symptomatic, at-risk, or providing care and support to those in this community. We believe in living well, finding hope, feeling the feelings, and showing up for one another—because together, we’re stronger. Learn more at: https://youngtimers.org Keywords: familial Alzheimer’s disease, early-onset Alzheimer’s, Alzheimer’s care planning, advance directives, SSDI, legal planning dementia, financial planning Alzheimer’s, Alzheimer’s and work, caregiver support, long-term care, early-onset dementia, planning for memory loss, DIAN community