Early Onset Insight: Findings from Dr. Erasmus’ 5yr Early Onset Study - Oct 2025 Parents' Roundtable скачать в хорошем качестве

Early Onset Insight: Findings from Dr. Erasmus’ 5yr Early Onset Study - Oct 2025 Parents' Roundtable

Join us for the October Parents Roundtable with special guest Dr. Corrie Erasmus, a leading FSHD researcher from the Netherlands. Dr. Erasmus will present findings from her groundbreaking 5-year study on early onset FSHD, one of the most comprehensive studies of its kind. Her research offers valuable insights into the progression, challenges, and care needs of children and adolescents living with FSHD, and has the potential to shape future standards of care and clinical research. Join us for our monthly Parents’ Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and to advocate for more research and clinical trials for children. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents. We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks. Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. You may change your group membership at any time by emailing us at [email protected].