CF Foundation | Tomorrow's Leaders College Program: A Peek Into Life With CF скачать в хорошем качестве

CF Foundation | Tomorrow's Leaders College Program: A Peek Into Life With CF

In the first session of our Tomorrow’s Leaders College Program, we heard from three adults living with cystic fibrosis — Joe Adderley, Rachel Kinney, and Kirk Astroth. Each presenter shared their individual journeys and provided a glimpse into their life with CF. 00:00 | Tomorrow’s Leaders College Program: A Peek into Life With CF 02:35 | How can you earn the networking, advocacy, and leadership digital badges from the CFF? 05:01 | What is cystic fibrosis and the physical effects of this disease? 06:21 | What is Teen Advocacy Day? 07:37 | What is Joe Adderley’s CF story? 12:48 | What is Rachel Kinney’s CF story? 24:24 | What is Kirk Astroth’s CF story and how did his late CF diagnosis affect his life? 34:33 | How can you manage CF while being social in college? 37:57 | What emotions do you feel after having a late CF diagnosis? 40:51 | How can the PASTEUR Act help with the mission of the CFF? 45:44 | Are there any other congressional bills pertaining to CF that our community needs to focus on? 49:35 | Time management tips to prioritize exercise as a way to maintain lung health