CF Foundation | Tomorrow's Leaders College Program: The History of CF Research скачать в хорошем качестве

CF Foundation | Tomorrow's Leaders College Program: The History of CF Research

In the second session of our Tomorrow’s Leaders College Program, we heard from Melanie Lawrence – an adult living with cystic fibrosis – who shared her CF story and experience with clinical trials. We also heard from Jered Weinstock, MD – a pediatric pulmonologist in Anchorage, Alaska – who shared the history of cystic fibrosis, the current drug pipeline, and advancements in CF care and research. 00:00 | Tomorrow’s Leaders College Program: The History of CF Research and What the Future Holds 00:47 | Melanie Lawrence shares her CF story. 11:44 | Introducing Jered Weinstock, MD. 15:29 | How does someone get cystic fibrosis and how does it affect their body? 17:44 | Who does cystic fibrosis affect? 18:29 | What does it mean to be an active CF research center? 19:09 | How and when is cystic fibrosis typically diagnosed? 22:05 | What is the history of cystic fibrosis? 25:12 | What is the current state of cystic fibrosis care and research? 30:45 | What drugs are in the CF pipeline? 35:16 | How does nutrition affect someone with cystic fibrosis? 40:18 | Are there mental health resources for CF patients? 44:15 | Is there a quadruple CF modulator in the pipeline? 45:18 | How do modulators help CF patients? 47:36 | What was Melanie Lawrence’s experience being in a clinical trial? 48:54 | How long does it take for therapies to go through clinical trials and get approved? 50:14 | How do rising prescription prices affect the CF community? 52:16 | How has having CF changed Melanie Lawrence’s personal outlook on life? 53:54 | How has working with CF patients changed Dr. Jered Weinstock’s personal outlook on life?