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#ACHONVERSATION

In this conversation, Dr. Shawn C. Standard, Head of #Pediatric #Orthopedics at the International Center for Limb Lengthening (ICLL), Rubin Institute for Advanced Orthopedics at ‪@LifeBridgeHealth‬ answers your questions on #limblengthening for #dwarfism with #achondroplasia patient, Chandler Crews, who also provides her perspective. [ This episode is from our original series, LP Doc Talk ] For more on Dr. Standard and the other conditions he treats, visit: https://www.limblength.org/our-team/p... Chandler's Patient Story: https://www.limblength.org/patient-st... ─────────────── 𝘾𝙊𝙉𝙏𝙄𝙉𝙐𝙀 𝙏𝙃𝙀 𝘾𝙊𝙉𝙑𝙀𝙍𝙎𝘼𝙏𝙄𝙊𝙉 Subscribe to our channel to stay up to date on all of our conversations + more 𝙁𝙊𝙇𝙇𝙊𝙒 𝙐𝙎 FACEBOOK –   / teamgrowingstronger   INSTAGRAM –   / growingstrongerorg   +   / achonversations   TWITTER –   / achonversations   𝙎𝘾𝙄𝙀𝙉𝘾𝙀 𝙀𝙈𝙋𝙊𝙒𝙀𝙍𝙄𝙉𝙂 𝙀𝘿𝙐𝘾𝘼𝙏𝙄𝙊𝙉 𝘼𝙉𝘿 𝙃𝙀𝘼𝙇𝙏𝙃 #GrowingStronger's mission is to improve the quality of medical care for those with #dwarfism by supporting research. On our channel, you will find a series of conversations with lead #healthcare experts and members of the dwarfism community. Our conversations range on a variety of topics such as management of care, family & friendship, what's trending surrounding dwarfism in the media, and breaking news in pharmaceutical research. 0:00 Introduction 2:27 My daughter is 10. Is it okay to begin lengthening the arms first before lengthening her legs? Can a child of the age of 10 handle such a life-changing and heavy operation? 13:34 What are things we need to think of when she is home after surgery for her well-being and state of mind? 15:41 What can go wrong (complications) during surgery and how often does it happen? 19:03 Is it okay that she's having doubts? She talks about the surgery and says she wants to do it but isn't 100% sure. Can you really be 100% sure when facing such a life-changing operation? 23:55 For straightening in the legs with achondroplasia why is the method used sometimes eight plates, sometimes osteotomy with permanent plates, and sometimes the big rings that go on the outside of the legs (external fixation device)? Is one of these methods better or safer than the other? 28:02 Can limb lengthening be done after having a spinal fusion? 31:02 Can arms and legs be lengthened at the same time? 34:29 How long do the external frames have to stay on? How exactly do the frames work? Can the internal lengthening rod be used during a first lengthening? 41:01 Not all doctors who perform limb lengthening will do so on those with pseudoachondroplasia. What are your thoughts on why it is riskier with pseudos and do you have any experience with this? 43:34 How much length can my child gain with one surgery? 50:08 Does insurance cover the surgery? 52:04 How is the pain managed? What medicine is prescribed to help with the pain? 56:15 My child is 2 and I know limb lengthening is something that will probably be in our future. When should we begin consulting? 58:46 What is the youngest age you have performed limb lengthening on for someone with achondroplasia? What is the oldest? What age would you say is too soon to start and is there a cutoff age?