2023 January: Community Webinar about Natural History Study and Clinical Trials in the UK скачать в хорошем качестве

2023 January: Community Webinar about Natural History Study and Clinical Trials in the UK

University of Oxford researchers Dr Theodora Markati and Prof Laurent Servais have provided an update on the progress of the Natural History Study for Angelman Syndrome and on the Clinical Trials. Also, you can hear a quick community update from FAST UK and Angelman UK. If you live in the UK and haven't yet joined the Natural History Study please reach out to the researchers. We have 5 open slots which we need to fill by the end of March: theodora.markati@paediatrics.ox.ac.uk laurent.servais@paediatrics.ox.ac.uk 00:55 Natural History Study update from Dr Markati 08:26 Q&A 16:20 Clinical Trials Update + Q&A from Prof Servais 28:03 FAST UK updates from Tom Keogh 29:52 Angelman Cafe announcement by Louise Prince 31:20 Katie Cunnea shares an update on ASA (Angelman Syndrome Alliance) 37:52 FAST UK's Therapeutics Bulletin https://cureangelman.org.uk/therapeut...