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How Can I Manage My Health Data?

New AI tools like ChatGPT Health (from OpenAI) and Claude for Health (from Anthropic) promise to make navigating your health data easier—summarizing notes, translating medical jargon, even drafting messages to your doctor. In this week’s Health Data Ethics Podcast, I dig into the additional truth: your privacy protections depend entirely on how you use these tools. If you, as a patient, use the public version of ChatGPT or Claude and copy/paste in your MyChart data? You’ve stepped outside of HIPAA—and into a space governed only by corporate privacy policies that can change tomorrow. That’s a big shift. Because while these tools can be helpful, they also introduce new risks: Once you share your data, you may not be able to take it back. Future developers could request access to it. And you might be training models that reflect only the digitally savvy, not the medically vulnerable. This episode is my attempt to equip patients and systems alike to ask better questions and make informed choices. The tech is evolving fast—but your privacy shouldn’t be an afterthought.