PACE trial and its effect on people with ME Debate in UK Parliament 20th February 2018 скачать в хорошем качестве

PACE trial and its effect on people with ME Debate in UK Parliament 20th February 2018

PACE trial and its effect on people with ME Debate in Westminster Hall in the House of Commons, UK Parliament Tuesday 20th February 2018 Moved by Carol Monaghan (Glasgow North West (SNP) --- Quotes Carol Monaghan This is a worldwide issue. The PACE trial results have affected people all over the world. In my folder, I have examples of people from Australia, the United States and Canada. Although there are no specialist centres in Scotland, the ones in England are recommending graded exercise therapy, which is making people worse. We need to deal with the issue. Carol Monaghan I think that when the full details of the trial become known, it will be considered one of the biggest medical scandals of the 21st century. Carol Monaghan I am just going to finish off. I am pleased that NICE is reviewing its guidelines on ME and has removed the recommendations to embark on harmful exercise, but I was contacted only last week by a lady who had been told recently by her GP to exercise her way to health. That highlights the huge need for education and for raising awareness among both the public and medical practitioners. I ask the Minister: can the next set of guidelines be drawn up through listening to those living with ME? What plans does she have to introduce compulsory training for medical practitioners on ME care and treatment? Can she assure me that specialist ME treatment centres are not advertising graded exercise therapy as a method of recovery? Will she support proper funding for ME research? Lastly, will she work with DWP colleagues to ensure that new guidelines are drawn up for dealing with people with ME? Finally, I thank the Countess of Mar and the ME Association for helping me to prepare for today. I also thank those living with ME, whose voices are not being heard. Paul Blomfield (Sheffield Central) (Lab) The Minister makes the point that final guidance is expected in October 2020, but given the significant doubt over CBT and GET and their impact now, does she recognise the strong case for NICE to suspend the current guidance, which points people towards those potentially damaging treatments?